Olivia Claire Groninger was born on Aug. 17, 2015. She was diagnosed, In-utero, late in the 2nd trimester with Tetralogy of fallot.
Olivia, is our fourth child but our second child born with a CHD.
Our second child, Isabelle, was diagnosed with HLHS & other genetic & health issues prior to birth. She passed away four short days of life. Being handed the news of another CHD diagnosis was extremely difficult and worrisome! Doctors and surgeons assured us that TOF , while complex, it is not as severe as HLHS and survival rates are much higher. All we could do was take one day at a time and hope and pray this CHD wouldn’t take away another baby of ours.
We chose to have our cesarean section back at the place that took such good care of us and gave us so much compassion with our first CHD child. That special place was and is C. S. Mott Children’s Hospital in Ann Arbor Michigan.
We loaded up our other two children, which at the time they were ages 5 and 1.5 years old and we made the long trek to Ann Arbor for all our pre-op appointments on Dec 11. We unexpectedly were admitted after the worst TET spell during her echocardiogram! Olivia had just turned four months old at the time of her first OHS on Dec. 14, 2015. After a few setbacks and all our holidays spent in Ann Arbor, we were finally released and returned home to Evansville on Jan. 11, 2016.
Olivia is now 4yrs old and doing great! We recently graduated from echoes every 6 mo to 1 every year! They are keeping an eye on her pulmonary pressures and muscle bundles for they may need surgical intervention in the future, but for now…. we are holding steady and watching her grow! We couldn’t be more proud of our little heart warrior! I am so thankful for the Mended Little Hearts chapter of Evansville-they help all of us heart parents feel less alone in this world of CHDs!
-Angela & Adam